Conclusions: The approach to cannabis use assessment, documentation, and education across CF care centers is variable. There is a need for care team and patient/caregiver education materials about cannabis/CBD and CF.
Results: There were 282 survey participants, with majority as providers (28%) and social workers (29%), representing all US regions. Participants varied in terms of frequency of evaluating cannabis use, with 15.4% “always,” 48.4% “sometimes,” and 41% “rarely,” or “never” asking about it. Regarding recreational versus medical cannabis use, 55.4% and 62.5% reported documentation of each type in the medical record, respectively. Participants reported appetite, pain, and nausea as the top three advocated indications for use. About 35% and 72% of participants felt “slightly” or “not at all” prepared to answer patient/family questions about cannabis and CBD, respectively.
Methods: A cross-sectional, anonymous survey study was distributed via email to CF directors and coordinators and to the Cystic Fibrosis Foundation (CFF) listservs of nurse, pharmacist, dietitian, social worker, and psychology care team members. The survey tool included multiple choice, scaled, and open-ended items, which assessed participants’ awareness of current cannabis laws in their state, prescribing practices for medical marijuana, screening and documentation practices, knowledge of and what indications participants believe cannabis and cannabidiol (CBD) could be beneficial. Data were analyzed using descriptive statistics.
Introduction: To help open the clinician dialogue regarding cannabis use in persons with cystic fibrosis (CF) in the United States, we aimed to describe current practices of use assessment and documentation processes related to cannabis.
Keywords: cannabidiol (CBD); cannabis/marijuana; cystic fibrosis; documentation; education.
Before making any rash decisions, I thoroughly researched the practice. Although I couldn’t find too much information regarding female cystic fibrosis patients and cannabis therapy, I did find research suggesting cannabis could soothe anxieties, aid in digestive issues, inspire weight gain, and allow for a better night’s sleep. With that in mind, I decided any of my concerns in relation to cannabis therapy were outweighed by the potential benefits.
Overall, my experience has been positive. Implementing cannabis into my routine has been so easy. It takes me an hour to get through my morning breathing treatments, and this doesn’t include the amount of time I need to clean my supplies, rinse my sinuses, take my oral medications, and prepare breakfast so I can take my pills correctly. Needless to say, mornings can be time consuming and exhausting.
So, when I take my first dose of cannabis in the afternoon, I’m finally able to relax into the rest of my day. It’s like an unfolding of sorts. Cannabis inspires me to be both productive and at ease. I do yoga, tidy up my space, go for walks outside, spend quality time with my cats (I’m obsessed with them), and work on a cannabis-centric podcast with my bestie.